Clin. Res. Project Coord.-ri

2 weeks ago

Toronto, Canada SickKids Full time

**About SickKids**:
Dedicated exclusively to children and their families, The Hospital for Sick Children (SickKids) is one of the largest and most respected paediatric healthcare centres in the world. As innovators in child health, we lead and partner to improve the health of children through the integration of healthcare, leading-edge research and education. Our reputation would not have been built - nor could it be maintained - without the skills, knowledge and experience of the extraordinary people who come to work here every day. SickKids is committed to ongoing learning and development, and features a caring and supportive work environment that combines exceptionally high standards of practice.

When you join SickKids, you become part of our community. We share a commitment and determination to fulfill our vision of _Healthier Children. A Better World_.

Don’t miss out on the opportunity to work alongside the world’s best in paediatric healthcare.

**Position Description**:
**Research Coordinator - Translational Genomics**

Department: Division of Clinical & Metabolic Genetics
Hours: 35 hours per week (FTE 1.0)
Status: 1-year contract, with possibility of renewal

The Translational Genomics team is looking for a dynamic **Clinical Research Project Coordinator** to support different research projects at The Hospital for Sick Children (SickKids). The research coordinator will notably be supporting the Genodermatoses Registry study and the Gene-STEPS (Shortening Time to Evaluation in Paediatric Epilepsy Services) study and be responsible for enrolling study participants, coordinating sample collection, maintaining study records and compliance with regulatory and institutional guidelines, completing data entry, ensuring the overall coordination of study activities and supporting other day-to-day operations of the study.

**Key Tasks & Responsibilities**:

- Support the project team and Principal Investigators (PIs) in maintaining project’s Research Ethics Board (REB) approval, consent/assent forms, regulatory approvals and institutional requirements.
- Assist the project team with the annual REB renewal process, amendments and revisions.
- Attend scheduled clinics to identify eligible patients for the study.
- Explain the study to participants, gauge families for their interest in study enrollment, accompany patients through decision and coordinate consent and sample collection process, where appropriate.
- Contact potential families by phone to follow-up on study requirements;
- Review medical records to identify relevant study data points, maintain up-to-date and accurate study records, and assume responsibility for maintaining the accuracy, accessibility, and confidentiality of study files and participant records;
- Support data extraction to provide study updates and for the analysis of relevant outcomes;
- Organize documentation (e.g. Intake forms, consent) for sample preparation and genetic analyses; follow-up on samples through the laboratory workflow;
- Liaise with a variety of stakeholders including physicians, genetic counsellors, laboratory scientists, researchers, medical trainees, and others to foster collaborative relationships and coordinate multidisciplinary study activities and initiatives;
- Actively participate in ensuring the success of the assigned projects by working with team members to identify areas of improvement and identify solutions to encountered challenges
- Assist with administrative tasks related to the study including coordinating meetings, taking minutes, provide summary reports of research progress and milestones
- Participate in grant and/or manuscript preparation, presentations, and project reporting;
- Attend relevant departmental meetings or rounds in order to increase knowledge and understanding.

**Here’s What You’ll Need**
- A Master’s degree in health sciences or a health-related discipline with a minimum of one year experience in clinical research
- Keen interest and/or knowledge of genetics and self-motivation to learn new concepts
- Familiarity with genetic test methods, dermatology and experience with medical terminology is considered an asset
- Ability to critically evaluate cases to determine appropriate study procedures
- Superior organizational and time management skills, as well as attention to attention to detail are essential
- Strong work ethic with the proven ability to work independently and collaboratively on tasks
- Effective and proactive problem-solving and critical thinking skills, with the ability to take on varied responsibilities and adapt to evolving priorities
- Proven ability to work resourcefully and prioritize tasks to effectively balance competing demands from multiple concurrent projects in a self-directed manner
- Strong interpersonal and written and oral communication skills with the ability to engage with a variety of stakeholders in a professional, inclusive, and culturally sensitive manner
- Desire to learn new concep

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