Data Request and Research Coordinator

3 months ago


Ottawa, Canada CHEO Full time

***

Manages BORN Ontario’s data request, data preparation, and data output to external and internal requestors. The scope of work includes up to 200 data requests/yr of varying complexity, from clinical care providers MOHLTC, MCYS, school boards, LHINs, Health Quality Ontario, Provincial Council for Maternal Child Health, midwifery stakeholder groups, screening labs and other provincial committees/programs. Also manages BORN’s internal and external research projects including grant proposals, investigator meetings, communication, REB approvals, site coordination and assistance with manuscript preparation.

**RESPONSIBILITIES**
- Triage and manage research and data requests coming into BORN
- Decide on eligibility to receive data from BORN among requestors/researchers and privacy implications of each request.
- Manage and track the work of four analysts to ensure best possible use of time and appropriate deadlines
- Ensure proper de-identification of datasets occurs as per the BORN privacy guidelines
- Verify all work coming back from data analysts to ensure the tables are correct, small cell sizes are suppressed, appropriate interpretation notes are included - where unsure, checks with epidemiologist or scientific manager
- Manages all paperwork associated with data requests. Consults with privacy officer as required ensuring Registry requirements are met.
- Liaise with CHEO and other REB and Research offices for ethics approval and research agreements.
- Logs all data requests, research agreements and status reports as per the registry guidelines
- Safely transmit data to requestors/researchers as per the registry guidelines
- Assist or develop/maintain systems and processes for organizing data and research requests
- Manages the cost recovery process associated with data requests - invoicing, payments, tracking
- Prepare annual reports on data request activities
- Administration of the study or clinical trial.
- Oversee recruitment including screening and obtaining informed consents
- Creation of data forms and study procedure manuals
- Communication between study personnel, sites and investigators
- Supervision of the collection, scoring, and coding of research information.
- Grant-related requirements including REB submissions
- Report writing
- Contribute to the preparation of manuscripts
- Training and supervision of study personnel.
- Development and management of budgets) for grant proposals and monitoring/reporting on budgets for active grants
- Coordinate, organize and chair relevant research meetings.
- Participates in professional development activities related to job requirements

**QUALIFICATIONS**
- Criminal Record Check (CRC) (Essential)
- Minimum 3 years research coordination experience (maternal child preferred) (preferred)
- Understanding of research design, procedures, guidelines and standards governing clinical research including the Ontario Personal Health Information Protection Act (preferred)
- Demonstrated management and organizational skills (Essential)
- Data management experience (Essential)
- Proficiency in computer skills (Microsoft Office) (Essential)
- Excellent communication (verbal and written), interpersonal and organizational skills (Essential)
- Experience with REB submissions, Good Clinical Practice Guidelines (preferred)
- Experience with protection of personal health information and privacy requirements (preferred)
- Bilingual (French and English) (preferred)

**CHEO values diversity and is an equal opportunity employer. We are committed to providing an inclusive and barrier-free work environment, starting with the hiring process and welcome interest from all qualified applicants.**

**CHEO is committed to providing a safe environment for staff, patients, and visitors. Consistent with that commitment, all applicants must be fully vaccinated against COVID-19 to be considered for any staff or volunteer opportunities. Applicants are also strongly encouraged to receive their COVID-19 booster shots when eligible to protect against the spread of COVID-19. Upon hiring, presentation of government issued documentation confirming full vaccination must be provided, or presentation of supporting documentation of a valid medical contraindication or other reasonable consideration pursuant to the Ontario Human Rights Code.**

**We thank all those who apply, however, only those to be interviewed will be contacted.**

**RÉSUMÉ DES FONCTIONS**

Le ou la titulaire gère la demande de données, la préparation des données ainsi que leur envoi aux requérants de l’interne et de l’extérieur. Il ou elle traite chaque année jusqu’à 200 demandes de données de complexité variable provenant de fournisseurs de soins cliniques, du MSSLDO, du MSEJ, des conseils scolaires, des RLISS, de Qualité des services de santé Ontario, du Provincial Council for Maternal Child Health, de groupes de sages-femmes, de laboratoires de dépistage et d’autres comités et programmes provincia



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