Role Summary

The ALS Society of Canada is seeking a highly motivated and compassionate individual to fill the role of Community Lead, Central, North Simcoe Muskoka and Northern Ontario. This position will be responsible for providing support services to individuals living with ALS and their families, as well as creating and supporting opportunities for awareness, advocacy, and fund development in the region.

Key Responsibilities

• Support Services
  • Manage a client caseload by establishing regular communication with individuals living with ALS and their families to provide support and help them navigate the healthcare system.
  • Identify issues, manage information, and provide non-clinical support to clients and families.
  • Work with Allied Health Professionals, families, individuals living with ALS, and the Equipment Program team to support the Equipment Program process as needed.
  • Facilitate support groups, make referrals to community support services, bereavement services as needed.
  • Liaise with healthcare and social services professionals to support client care and advocate on their behalf when required.
• Advocacy and Awareness
  • Raise awareness about ALS disease to healthcare providers, community agencies, service clubs, students, families, and the public.
  • Organize educational opportunities with vendors and suppliers and relevant partner agencies such as hospice.
  • Develop partnerships and relationships with healthcare and social services organizations.
  • Represent ALS Canada in local and provincial advocacy efforts, including community events, media interviews, speaking engagements, and presentations.
  • Attend government meetings in relation to provincial advocacy efforts.
• Fund Development
  • Assist with Walk to End ALS events, working with the Fund Development Team to drive recruitment and training for event day Walk volunteers, manage all planning, sponsorship, relationships, promotion, and media during walk preparations.
  • Work closely with the Fund Development team to identify potential donors and relationships that will enhance regional fund development activities.
  • Participate in and develop fundraising community events in the region as required and attend events as an ambassador of ALS Canada.

Requirements

• Successful completion of an accredited health discipline program and eligibility for registration with a professional regulatory college required (e.g., Social Work or relevant field experience).
• Knowledge of the Ontario healthcare system and resources.
• Excellent computer skills (Word, Excel, PowerPoint) and experience with CRM systems.
• Strong interpersonal, communication, and active listening skills.
• Demonstrated excellence in relationship building, working as part of a team, problem-solving, advocacy skills, and time management.
• Compassionate and professional with an ability to work well under pressure.
• Comfortable connecting with clients, teammates on a virtual platform.
• A valid driver's license and access to a vehicle.
• Ability to work flexible hours, including evenings and weekends.

ALS Canada Core Values

• Accountability
• Collaboration
• Compassion
• Integrity
• Dynamism
• Respect